Grand Challenges Program: General Research: Research Ethics

This book provides 16 brief research ethics cases that describe situations in which ethical dilemmas arise and present opportunities to think through the different implications for researchers. The cases emphasize different types of ethical dilemmas involving faculty, students, participants, and stakeholders.

This textbook explores key ethical dilemmas - including research boundaries, informed consent, participation, rapport and analysis - within the context of a rapidly changing research environment. The book covers the ethical issues related to the data collection process.

This resource provides an introduction to issues that arise in the context of Social-Behavioral-Educational (SBE) research involving human subjects. Topics covered in the guide include history and ethical principles, defining research with human subjects, the federal regulations, assessing risk, informed consent, privacy and confidentiality, research with prisoners, research with children, research in public elementary and secondary schools, international research, Internet-based research, and unanticipated problems and reporting requirements.

The story of Henrietta Lacks, a poor black tobacco farmer whose cells--taken without her knowledge in 1951--became one of the most important tools in medicine, vital for developing the polio vaccine, cloning, gene mapping, and more. This is a story of the collision between ethics, race, and medicine; of scientific discovery and faith healing; and of a daughter consumed with questions about the mother she never knew.

This report examines three key issues related to human participation in social, behavioral, and economic sciences research: (1) obtaining informed, voluntary consent from prospective participants: (2) guaranteeing the confidentiality of information collected from participants, which is a particularly challenging problem in social sciences research; and (3) using appropriate review procedures for "minimal-risk" research. Provides detailed information on the operation of Institutional review boards (IRBs).

Tackles the ethical issues (through case studies) of being a scientist rather than the ethical questions raised by science itself.

This book explores the relationship between the production of ethical stances in two different contexts: the ethical maneuvering of participants within online media-fan communities and the ethical decision-making of the author as Internet researcher, maneuvering, as it were, in the academic community. The book outlines a reflexive framework for exploring research ethics at different levels of analysis; the empirical settings of research; the theoretical perspectives which inform the researcher's objectification of the research settings; and the methodological issues and practical decisions that constitute the activity as research.

The forty-year Tuskegee Syphilis Study, which took place in and around Tuskegee, Alabama, from the 1930s through the 1970s. This book is a comprehensive analysis of the notorious study of untreated syphilis among African American men, who were told by U.S. Public Health Service doctors that they were being treated, not just watched, for their late-stage syphilis.